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Other content tagged: patient rights

Navigating twin pregnancies: A parent’s guide to screening

Guest article by Stephanie Ernst, Founder and Director of The TAPS Support Foundation, and Professor Asma Khalil, Consultant Obstetrician and Fetal Medicine specialist at St George's Hospital, London.   The ISUOG Practice Guidelines have long been an important resource for healthcare professionals managing twin pregnancies. However, their technical nature can be difficult for expectant parents to fully understand. To address this gap, the Patient Guide to Twin Pregnancy Screening was created by Stephanie Ernst and Prof. Asma Khalil. This guide…
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Guaranteed by the state: Empowering families to know and exercise their rights

Guest article by Oleksandra Balyasna, Head of  partner parent organisation "Early Birds" in Ukraine and member of the EFCNI Parent and Patient Advisory Board. Knowing your rights guaranteed and provided by the State can decrease the stress among parents of preterm babies and improve health outcomes for both mothers and newborns. Questions to think about for every parent organisation: Does your patient network know their rights and where to check this information? Do you know what to do when your…
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