COVID-19 and its distribution is on everyone‘s lips and speculations run high. Especially older people and persons with a pre-existing medical condition appear to be develop a serious illness more often than others (WHO). This might leave parents-to-be, parents of preterm born infants and former preterms worrying. We talked to Professor Doctor Christoph Bührer, Medical Director Department of Neonatology, Charité Berlin about the risks he sees for unborn babies, preterm born infants and preterm born adults. …
How can you support parents in the neonatal intensive care unit (NICU)? Who would know better than someone who has been affected herself? Learn more in the eSeminar by the Neonatal Care Academy with Silke Mader, Chairwoman of the Executive Board and co-founder of the European Foundation for the Care of Newborn Infants (EFCNI). Silke shares the parent perspective on welcoming parents and the family 24 hours a day and…
To benefit from expert input in order to finalise the report on Transforming Care for Every Small and Sick Newborn, the World Health Organization (WHO) has hosted a three-day technical meeting in April on Standards of Care for Small and Sick Newborns in Geneva, Switzerland. One crucial objective of the meeting was to take neonatal nursing, nurturing care and human rights as they apply to newborn care into consideration. We are thrilled that EFCNI had been invited to participate in…
Real world data (RWD) in medicine is data derived from a number of sources, for instance surveys or focus group interviews that are associated with outcomes in a heterogeneous patient cohort in real-world settings. It is increasingly used for research purposes, yet there is a lack of data about parental views on the use of this data which had been collected in routine practice for research purposes. But…
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Neonatal real world data for research purposes – what is the parents’ view?
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