Other content tagged: parent organisation
FINE trainings in Hungary: How to train medical staff in times of a pandemic
A guest article by Livia Nagy Every year more than 8,000 newborns begin their lives in premature intensive care units of different levels in Hungary. The pillars of family-centred care are absent from numerous units, one of the most significant of these being the lack of opportunities for the 24-hour presence of parents and their involvement in the care of their children. In 2019 the Government of Hungary set family-friendly values and the implementation of family and child-friendly approaches as…
Read more
“Stay close to your parents” – how a German association supports parents of preterm babies in times of pandemic
The association "Das frühgeborene Kind" e.V. with its nationwide network of self-help initiatives and counselling centres for families with preterm born infants is a contact and placement centre in Germany for all who need help and information regarding preterm births. In an interview with EFCNI Katrin Eglin, spokeswoman of "Das frühgeborene Kind" e.V., explains how the association is involved in the times of COVID-19 Mrs Eglin, exchanging knowledge and sharing experience are always important but even more so in times…
Read more
New parent organisation in our network – A warm welcome to Preemie Connect
A warm welcome to Preemie Connect, a new parent organisation that joined our network! Preemie connect is founded and run by Tasmin Bota, the mother of a baby born preterm in South Africa. Together with EFCNI’s and GLANCE’s long-term partner the African Foundation for Premature Babies and Neonatal Care (AFPNC) she hosted her first event for World Prematurity Day in 2018 and has been advocating for parental involvement since then. “Hosting that event allowed me to see just how many…
Read more
Virtual Education sessions for parents: An interview with Fabiana Bacchini
We interviewed Fabiana Bacchini from the parent organisation Canadian Premature Babies Foundation (CPBF) on their Virtual Education sessions, which include interviews with experts on topics regarding COVID-19 and prematurity, and their new COVIDCare program which offers two free counselling sessions to new parents in need. Exchanging knowledge and sharing experience are always important but even more so in times of COVID-19. What do you offer to support your parent network in terms of exchange and support…
Read more
NeonaTEL: A call centre for parental support during the COVID-19 pandemic, established by the Romanian parent organisation Unu si Unu
Due to the COVID-19 pandemic parents are in need of special support. They have questions which should be answered on daily basis. EFCNIs partner parent organisation Unu si Unu established a call center to stay in touch with parents and parents-to-be and to help them to stay healthy and close to their children in the time of COVID-19. Corina Croitoru from Asociația Unu si Unu in Romania explained how the Call Center works and what is needed to set it up.…
Read more
15 minutes is NOT OK – Irish parent organisation campaigns against the restriction of parental access to Neonatal Intensive Care Units (NICU)
Due to the COVID-19 pandemic Neonatal Intensive Care Units (NICU) have restricted or even abolished the time parents can spend in the NICU with their baby. EFCNIs partner parent organisation Irish Neonatal Health Alliance (INHA) recently launched the campaign “15 minutes is NOT OK” which raises awareness for an issue that will have long-term consequences for both parents and babies. Mandy Daly, founder of INHA, told us how this campaign was developed. Mrs…
Read more
Supporting parents during the COVID-19 pandemic – Australian parent organisation shares best practice in reaching out digitally
Across the world parents of premature babies are deeply affected by the COVID-19 pandemic. The hospitals’ safety measures taken to protect against COVID-19 often separate parents form their newborns, even when the whole family is healthy. Worldwide parent organisations do their best in order to support those families in need. We talked to Kylie Pussell, CEO and Co-Founder of the Miracle Babies Foundation, about how the current situation changed the way the foundation is reaching out to parents. [caption id="attachment_12588"…
Read more
Unseen Power –TED talk about the power of parent organisations
Oleksandra Balyasna, Founder and Chairwoman of our Ukrainian partnering parent organisation Early Birds / Ранні пташки, was a speaker at the renown TED Talks. Under the motto: ‘UnSeen Power – how to change the world through our decision and actions’, 100 attendees joined the regional TEDx event at the Bel etage Concert Hall in Kyiv, end of October. TED is a non-profit organisation devoted to spreading ideas in the form of short, powerful talks. TED was initiated in 1984 as…
Read more
All things neonatal: professionals and parent representatives debate neonatal care in Hungary
A guest article by Livia Nagy The 17th Congress of the Hungarian Perinatology Society was organized in Siófok, Hungary by the Department of Obstetrics and Gynaecology and the newly-founded Department Group of Neonatology at Semmelweis University. On the first day of the conference, numerous insightful high-quality presentations were shown to the audience. The presentation by Anikó Kussinszky (Office of the Commissioner for Fundamental Rights, Head of Department of Equal Opportunities and Children's Rights) was certainly a highlight in the session…
Read more
Important milestones for preterm babies and their parents in the Slovak Republic
A guest article by Iveta Jančoková from the Slovakian parent organisation “maliček” In the Slovak Republic it is not very common that parent representatives have the opportunity to present their cause in an expert forum for medical staff, therefore it was a great honour for us and “maliček” to be invited to talk about the parental view in preterm health during the international congress “Martin's Days 2019”, taking place in Martin. At this conference we took the opportunity to present…
Read more
