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Other content tagged: adults born preterm

Survey: Adults born preterm with respiratory dysfunction

Calling all adults born preterm: Help us shape the future of prematurity research! EFCNI recently joined a project called “EMPOWER: Real-world patient research in prematurity and respiratory diseases” by Chiesi, a survey for adults born preterm. The survey aims to explore the perspective of patients with asthma, COPD or BPD who were born preterm to assess their awareness level of their medical history from an early age and to gather information about their interactions with various physicians.   Join the…
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Ein Leben lang Frühchen

Die Generation Frühchen ist erwachsen geworden (english version below) „Dank der Medizin überleben immer mehr Kinder, die zu früh geboren werden. Aber wenn sie groß sind, werden sie oft allein gelassen." Der Artikel "Die Generation Frühchen ist erwachsen geworden", erschienen in der tina, berichtet aus den Leben von Juliëtte Kamphuis und Lukas Mader. Beide wurden zu früh geboren und sind dadurch auch heute im Erwachsenenalter auf spezielle, medizinische Behandlungen angewiesen. "Am Anfang findet noch eine intensive medizinische Betreuung für sie…
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Born too small or too soon and the risk for developing psychiatric disorders

In their new publication, the Adults born Preterm International Collaboration (APIC) combined data from ten studies on the question whether individuals born very preterm and/or at very low birthweight have a higher risk of developing psychiatric disorders later in life. Compared to individuals born full-term and/or at normal weight, they have a clearly higher risk for several disorders in the spectrum of psychiatry; however, absolute numbers are low in both groups. Does very preterm…
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Health-related quality of life following extremely preterm birth

The EPICure study analysed the Health-Related Quality of Life (HRQL) in 129 adults born extremely preterm in the UK and Ireland in comparison to adults born at term. It was found that participants born with impairment had the lowest scores for HRQL, followed by those born extremely preterm without impairment, with cognition being the most affected domain. Interestingly, parent-reported HRQL tended to be lower than the self-reported reality. Since 1990, thanks to advances in…
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Study to evaluate the health and quality of life of adults born preterm

The Institute of Public Health of the University of Porto (ISPUP) launched “HAPP-e: Health of Adult People born Preterm – an e-cohort pilot study” to study the health and quality of life of adults born preterm worldwide, using digital tools. Adults with a history of preterm birth represent a growing share of the population. Evidence shows that the majority of preterm infants adapt extremely well during the transition into adulthood. However, a significant part remains at higher risk for neurologic,…
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