Parent and patient organisations

https://icombo.org/

E-Mail:

Monica Rankin, Chair
chair@icombo.org

Cellebroersstraat 16/Rue des Alexiens 16
1000 Brussels
Belgium

Phone: +32 (0)2 502 0413
Contact: info@ifglobal.org
Facebook: ifsbh

Rocky Bottom
Trerieve Downderry PL11 3LY
United Kingdom

Phone: +44 1503 250 668/961
Contact: info@ipopi.org
Facebook: ipopipid

Facebook: Prematuros Grupo Crisálida

PO Box 95
Moorebank NSW 1875
Australia

Phone: 24 Hour Family Support 1300 MBABIES / 1300 622 243
Head Office: 02 9724 8999
Contact: info@miraclebabies.org.au
Website: https://www.miraclebabies.org.au/

Twitter: @MiracleBabies
Instagram: @miraclebabiesfoundation
LinkedIn:@Miracle Babies Foundation
Facebook: @MiracleBabiesFoundation

1/203 Riversdale Road
Hawthorn, Vic 3122
Australia

Phone: +61 1300 697 736
Contact: contact_us@lifeslittletreasures.org.au
Website: www.lifeslittletreasures.org.au

PO Box 400, RBH Post Office
Queensland 4029
Australia

Phone: +61 1300 773 672
Contact: contactus@pipa.org.au
Facebook: PIPAssociation
Website: www.pipa.org.au

Auenbruggerplatz 30
8036 Graz Austria

Phone: +43.316.385.26.24
Contact: kontakt@kleine-helden.at
Website: www.kleine-helden.at

Müllner Hauptstraße 48
5020 Salzburg Austria

Contact: office@frueh-r-leben.at

Khoruzhey str. 22
220123 Minsk Belarus

Phone: +375 29 125 76 75
E-mail: info@premature.by

Sobinov St. 46/ 1 room 4
220040 Minsk Belarus

Contact: info@rano.by
Facebook: www.facebook.com/rano.by

Tervuursevest 163
3000 Leuven Belgium

Phone: +32.16.22.44.43
Contact: contact@vvoc.be

Contact: neonidparents@gmail.com
Facebook: Neonidbelgium
Phone: +32 493 98 63 98

Noah’s Ark

Website: www.noahsark.be

Facebook: www.facebook.com/noahsarkbelgium

Phone: +32 475 74 48 57

Email: laetitia@noahsark.be or michel@noahsark.be

Website: www.cokoen.org

E-mail: contact@cokoen.org

Facebook page: www.facebook.com/Cokoen.excouveusekinderen

Private Facebook group: Cokoen – fellow sufferers group (only for ex-couveuse children)

Porto Alegre, Brazil
Phone: +55 51 98118 2088
Contact: Denise Suguitani, Executive Director

denise@prematuridade.com
Website: www.prematuridade.com
Instagram: @prematuridadepontocom

Mayor Dimitar Dumbalakov,
1220 zh.k. Triagalnika – Nadezhda,
Sofia Bulgaria

Website: https://www.premature-bg.com/
Phone: 088 754 5446
Contact: office@premature-bg.com

Instagram: @ourprematurechildren
Facebook: @prematurebg

CPBF-FBPC
4225B Dundas Street West
Etobicoke, ON, M8X 1Y3
Canada

Phone: 1-416-418-8916

Contact: Fabiana Bacchini, Executive Director
E-mail: fabiana@cpbf-fbpc.org
Website: www.cpbf-fbpc.org

Twitter: @canadianpreemie
Instagram: @canadianpreemies
Linkedin: @canadian-premature-babies-foundation
Facebook:@canadianpreemies

1136 Centre Street
Suite 409 Thornhill, ON L4J 3M8

Phone: +1-416-833-3860

Contact: Claire Kerr-Zlobin
E-mail: info@hshf.org

Website: www.lifewithababy.com

Social Media:

https://www.facebook.com/LifeWithABaby

https://twitter.com/lifewithababy

https://ca.linkedin.com/in/lifewithababy

Pasaje LATORRE 1 Casa 29
Chorillos del Mar, V Region
Chile

Contact: Yonotuve9meses@gmail.com
Facebook: https://www.facebook.com/asprem.chile.2/
Instagram: https://www.instagram.com/asprem_chile/
Twitter: https://twitter.com/asprematuro

Santiago de Chile
Chile

Contact: contacto@neovidas.cl
Website: www.neovidas.cl

Circular 1ra # 73 – 34 Bloque 22
Medellín
Colombia

Phone: +57 4 354 84 32
Contact: Funmilagrosdevida@upb.edu.co
Facebook: fundacionmilagrosdevida
Website: https://www.milagrosdevida.org/

Teléfono: +506 6040-1929
Correo: info@fundaprema.org

www.fundaprema.org
Facebook: https://m.facebook.com/fundaprema/
Instagram: https://www.instagram.com/fundaprema/

Club of parents of prematurely born babies
Dubravica 52
Zagreb 10000 Hrvatska

Phone: +385 91 / 371 2722
Contact: info@palcici.hr

Arch.Makariou III Avenue,
95, Charitini Building,
1071 Nicosia,
Cyprus

Phone: (+357) – 80012200
Email address: thermokoitidaagapis@gmail.com
Website: https://www.thermokoitidaagapis.com/

Facebook: @thermokoitidaagapis
Instagram: @thermokoitidacy
Twitter: @thermokoitidacy

P.O. Box 22411
1521, Nicosia Cyprus

Phone: +357 99 547724
Contact: morathavmata@gmail.com
Facebook: Mora Thavmata

Zdarska 313
Nove Veseli Czech Republic

Phone: +420 608 888 778
Contact: info@nedoklubko.cz

Allehelgensgade 13, st.tv
4000 Roskilde Denmark

Phone: +30.49.59.24
Contact: info@praematur.dk

Contact: PequenasVidas@gmail.com

Contact: kiri@enneaegsedlapsed.ee 
Facebook: www.facebook.com/EnneaegsedLapsed
Website: www.enneaegsedlapsed.ee

Contact: pj@kevyt.net

14 rue de Longchamp

92 200 Neuilly-sur-Seine

Phone: +33 1.41.41.60.90
Contact: info@sosprema.com
Website: https://www.sosprema.com/page/173781-accueil

Facebook: @SOSPrema
Instagram: @sos_prema.officiel
LinkedIn: @SOSPrema
Twitter: @SOSPrema

Facebook Page: Save the Tiny life

Website: savethetinylife.org

Email: info@savethetinylife.org

Darmstädter Landstraße 213
60598 Frankfurt am Main Germany

Website: https://www.fruehgeborene.de/
Phone: +49 069 – 58 700 99 – 0
Fax +49 069 – 58 700 99 – 9
Contact: info@fruehgeborene.deinfo@fruehgeborene.de

Facebook: @fruehgeborene
Instagram: @bundesverband_fruehgeborene
Twitter: @fruehgeborene
LinkedIn: Bundesverband “Das frühgeborene Kind”​ e.V.: Über uns | LinkedIn 

45 Kinshasa Avannue
East Legon Accra
Ghana

Phone: +233.244.336.281
Contact: info@LittleBigSouls.org
Website: https://littlebigsoulsghana.com/
Facebook: https://www.facebook.com/littlebigsoulsghana/
Twitter: https://twitter.com/LittleBigSoulsG

Instagram: @afpncofficial
Twitter: @afpncofficial
LinkedIn: @afpncofficial
YouTube: @afpncofficial
Tiktok: @afpncofficial
Facebook: @afpncvoice

Ioannou Gennadiou 16
Athens 11521 Greece

Phone: +30.210.72.9.99.92
Contact: through Facebook page

Contact: www.koraszulott.com/korababa-admin.html
Website: www.koraszulott.com

Csorsz u.41.,
1124-Budapest, Hungary

Contact Name: Lívia Nagy Bonnard
E-Mail: info@mellettedahelyem.hu
Website: https://www.mellettedahelyem.hu/

Facebook: @mellettedahelyem
Twitter: @AHelyem
Instagram: @mellettedahelyem
Youtube: Melletted a Helyem Egyesület

Contact: drifa@fyrirburar.is
Facebook: fyrirburar.is
Website: www.fyrirburar.is

26 Oak Glen View
Southern Cross Bray CoWicklow Ireland

Email: info@inha.ie
Facebook: Irish Neonatal Health Alliance
Twitter: twitter.com/irishneonatal

Contact: info@vivereonlus.com

via Lorenz-Boehler 5
39100 Bolzano Italy

Contact: fruehgeborene-suedtirol@hotmail.com
Website: www.fruehgeborene-suedtirol.com

Largo Agostino Gemelli 8
00168 Rome Italy

Phone: +39 6 35501947
Contact: info@genitin.it
Facebook: bambiniprematuri

Via del Pino 20 c/o centro Il Baobab
50137 Firenze Italy

Contact: info@piccinopiccio.it
Facebook: Piccino Picciò Onlus Associazione genitori neonati a rischio

Piazza della Vittoria 1
42100 Reggio nell Emilia Italy

Phone: +39 347 2332022
Contact: info@progettopulcino.org
Facebook: ProgettoPulcinoOnlus

206 Tenshooffice ochanomizu,
1-9-5 Kandaawajicho, Chiyodaku,
Tokyo, Japan

Tel: 81-3-3255-8286
Fax: 81-3-3255-8287
E-mail: contact@join.or.jp
Website: https://www.join.or.jp/

37/3 Ykylas Dukenuly St., Saryarka district, Nur-Sultan city, Republic of Kazakhstan

Phone: +7 701 322 74 62

Contact: fondbekzat@mail.ru

E-mail: info@esmuklat.lv

Website: www.esmuklat.lv

Facebook: @biedriba.esmuklat

Instagram: @biedriba_esmu_klat

Contact: neisnesiotukas@gmail.com

Eiveniustr. 2-266
Kaunas Lithuania

Contact: inga@padeduaugti.lt

Kole Nedelkovski 32/1-6
1000 Skopje, N. Macedonia

Phone: +389 78 377791

Website: www.lulka.org
Contact: contact@lulka.org , denis.lulka@gmail.com
Facebook: www.facebook.com/OrganizationLULKA

Website: www.supportprematsinmalawi.org

Email: office@supportprematsinmalawi.org

Cell: +265995730839

Address: Block B, SD Pharmacy Building, Area 23 Road, Chilinde/Kawale, Lilongwe, Malawi.

Mariano Escobeo 362-4
Col. Anzures
Mexico City
11590
Mexico

Phone: +521 5526539551
Website: www.conamorvenceras.org
Contact: conamorvenceras@gmail.com

Facebook: www.facebook.com/pages/Con-Amor-Venceras
Twitter: @conamorvenceras
Instagram: con_amor_venceras

Viveros de la Cascada no. 87,
Col. Viveros de la Loma
Tlalnepantla
Edo. de México
Mexico

Phone:  044.55.40.85.85.29
Contact: nacertemprano@gmail.com
Website

Marshallweg 13, unit 2
3068 JN  ROTTERDAM

Phone: +31.7.03.86.25.35
Contact: info@care4neo.nl

Anna van Hensbeeksingel 27
2803 LP Gouda Netherlands

Phone: +31 6 52 86 10 35
Contact: info@kleinekanjers.nl
Facebook: kleinekanjers

PO Box 84144
2508 AC Den Haag Netherlands

Phone: +31 88 633 38 36
Contact: info@nee-eten.nl
Facebook: neeeten

Fazantenkamp 68 (only mailing)
3607 CC Maarsenplein
Netherlands

Phone: +31 6 21220983
Contact: elkedag@prematurendag.nl
Facebook : prematurendag

Aalbessenstraat 7
1326HS Almere
The Netherlands

Phone: +31 629 841 203
Contact: hello@tapssupport.com

www.stichtingtapssupport.com

Ward 92 NICU, Level 9
Auckland City Hospital, Park Road, Grafton
Auckland 1023

Contact: info@littlemiraclestrust.org.nz

Facebook: @littlemiraclestrust
Instagram: @littlemiraclestrust
Twitter: @littlemiraclenz
LinkedIn: @TheLittleMiraclesTrust

Suite 15 Bolingo Hotel & Towers Area 10
Garki Business District Abuja
Nigeria

Phone: +234.802.127.0554

Facebook: LittleBigSoulsUKUSAFRICA

Kobi Ajayi, MPH, MBA

Founder/CEO,

Email: eden.helpline@gmail.com

WhatsApp only: +234 (80) 379-44-300

Website: www.edenfoundationg.com

Facebook | Instagram | LinkedIn | Twitter

Gågata 5
2208 Kongsvinger Norway

Phone: +47.94.19.63.48
Contact: post@prematurforeningen.no

Premature Baby Foundation in Poland

ul. Sarmacka 12/2
02-972 Warsaw
Poland

Phone: +48 601 251 428
Contact: tomasz.makaruk@wczesniak.pl

ul. Wyspianskiego 17
42-600 Tarnowskie Góry Poland

Phone: +48 502-55-80-84
Contact: biuro.fsr@gmail.com

38 Turkusowa Streer
05-077 Warsaw, Poland

https://www.koalicjadlawczesniaka.pl/
biuro@koalicjadlawczesniaka.pl

ul. Gajowa 76/37
85-087 Bydgoszcz

www.kolorserca.pl
fundacja@kolorserca.pl

Alte
Portugal

Contact: nascerprematuro@gmail.com

Website: www.nascer-prematuro.pt

Lisboa
Portugal

Phone: +35 1 91 7837102
Contact: geral@xxs-prematuros.com

Porto
Portugal

Contact: paisprematuros@gmail.com

Str Aleea Privighetorilor, nr 86H, District 1
014031 Bukarest
Romania

Corina Croitoru
Phone: +40 (0)745 63 98 98
Contact: contact@arnis.ong, corina.croitoru@arnis.ong

Facebook: https://www.facebook.com/asociatiaARNIS/
Website: https://arnis.ong/

Str. G. Puccini nr 8A et 4, cam 4, sect 2
Bukarest
Romania

Contact:  contact@asociatiaprematurilor.ro
Facebook: facebook.com/asociatiaprematurilor/ 

Romania

Contact: livia_sibiu@yahoo.com
Facebook: www.facebook.com/BabyCareSibiu

Suvorovskaya 12 – 9
Moscow
Russia

Phone: +7-916-759-95-95
Contact: info@pravonachudo.ru

nab. Akademika Tupoleva 15
Moscow
Russian Federation

Phone: +7-(495)-926-95-68
Contact: info@sunlightfond.ru
Facebook: www.facebook.com/solncepodari/
VKontakte: vk.com/podari_solnechny_svet

Ostrovskogo, 20A
Pushkino Moscow region
Russian Federation

Website: www.fond-providenie.ru

Phone: +7 985 431 56 76
Contact: info@fond-providenie.ru
Facebook: https://www.facebook.com/fond.providenie
Instagram: https://www.instagram.com/fond_providenie/
Telegram: https://t.me/fond-providenie
Odnoklassniki: https://ok.ru/group/55192043323645

Serbia

Please contact EFCNI to establish a contact.

Krásnohorská 11
851 07 Bratislava
Slovakia

Phone: +421 948 129 985
Contact: info@malicek.sk

Website: https://www.malicek.sk/
Facebook: @nasmalicek
Instagram: @malicek.sk

Tasmin Bota

Preemie Connect

www.facebook.com/preemieconnect

Phone number: +27 64 508 5445

web address: https://preemieconnect.my.canva.site/

e-mail address: preemieconnectsa@gmail.com

Social Media Handles: @preemieconnect

Mahlogonolo Thobile Foundation
Johannesburg
Gauteng Province
South Africa

Contact person: Moshala Mothiba
Mobile: +27 76 802 9912
Email: hello@mahlogonolothobile.org
Website: https://mahlogonolothobile.org

Social Media:
Instagram: @prembabies_moms
Facebook: https://www.facebook.com/MahlogonoloThobileFoundation
Twitter: https://twitter.com/MahlogonoloTho1

Ribadavia 9, Bajo 4
28029 Madrid
Spain

Contact name: Aurora Pimentel
Phone: +34 657 667 086
E-Mail: aprem@aprem-e.org
Website: www.aprem-e.org

Twitter: @APREMprematuros
Facebook: Aprem Prematuros
Instagram: @_aprem_es
Youtube: Aprem Prematuros

Cr. Santa Maria, 69 baixos
08756 La Palma de Cervelló (BARCELONA)
Spain

Contact name: Bet Farga
Phone: +34 699982055 / 685417457
E-Mail: info@somprematurs.cat
Website: https://somprematurs.cat/

Twitter: @SomPrematurs
Facebook: Somprematurs
Instagram: @SomPrematurs
Youtube: Som Prematurs

Contact:  Monica Virchez
Mov. and Whatsapp: +34 651162006
E-mail: monvir@hotmail.com
Website: www.prematura.info
E-mail: prematura@prematura.info

Address:
Clara Campoamor 4, P2, 1-B
28703 San Sebastian de los Reyes
Madrid, Spain.

c/o Karl Rombo Häggvägen 4
12134 Enskededalen
Sweden

Contact: kansliet@prematurforbundet.se
Facebook: prematurforbundet

c/o Jessica Schiött Spångavägen 69
168 57 Bromma
Sweden

Contact: jessica.schiott@karolinska.se

Klintegårdsvägen 39
433 32 Partille
Sweden

Phone: +(46)0708439230
Contact: info@prematurmirakel.se

Headquarters:

Maternité du CHUV

P/A Espace Parents-Familles, 8e étage

Avenue Pierre Decker 2

CH – 1011 Lausanne

Suisse

Website: www.netroptot.ch

General e-mail: info@netroptot.ch

General coordinator e-mail: cristinaguillet@netroptot.ch

Hotline: +41 76 296 11 10

Instagram: https://www.instagram.com/associationnetroptot/

Facebook: https://www.facebook.com/netroptot/

LinkedIn: https://www.linkedin.com/company/association-n%C3%A9-trop-t%C3%B4t/?viewAsMember=true

Website: https://www.fruehchenschweiz.ch/

Phone: +41 31 515 65 25

Contact: info@fruehchenschweiz.ch

Facebook: @fruehchenschweiz

Instagram: @fruehchenschweiz

8F., No.92, Sec. 2, Zhongshan N. Rd., Zhongshan District
Taipei City 104
Taiwan

Phone: +886 2 2511-1608
Contact: pbfyu@ms1.mmh.org.tw
Website: www.pbf.org.tw

Istanbul, Turkey

Phone: +90 212 367 4616
Contact: info@elbebekgulbebek.org

Twitter: https://twitter.com/PretermsUG

Contact person: Kyalisima Louise

+256-777-149-922

Email address: leedpretermfoundation@gmail.com

Twitter: https://twitter.com/PrematureCentre

Handle: @PrematureCentre

Contact: Isabelle Kavira Furaha

Contact Number:+256751847461 / =256771222042

Web site: www.mamatulia.org

Facebook: mamatulia

Email address: mamatuliaug@gmail.com

X: mamatulia1

29, Saksagansky street apt. 3
01033 Kyiv
Ukraine

Phone: +38 050 335 37 97
Contact: ranniptashky.go@gmail.com
Facebook: ranniptashky

1^st Floor North, 10-18 Union Street
London
SE1 1SZ

• Contact: hello@bliss.org.uk
• Website: bliss.org.uk
• Social media (X/Facebook/Instagram): @Blisscharity

Lottie King
Founder & Leo’s mum
Registered Charity 1179901
8, Hall Wood Close, Yarm, TS15 9FR
UK

Phone: +44 7824353130
Contact: hello@leosneonatal.org
Social Media: @LEOSNEONATAL
Website: www.leosneonatal.org

15 Abroath Gardens Orton Northgate
Peterborough Cambridgeshire PE2 6BS
United Kingdom

Phone: +44 845 372 1922
Contact: info@littlebigsouls.org
Facebook: LittleBigSoulsUKUSAFRICA

Carryduff BT8 8EH
Northern Ireland

Phone: +44 28 9081 5050
Contact: info@tinylife.org.uk
Facebook: TinyLifecharity

Saul’s Light

Location: Louisiana, USA
Website: www.saulslight.org
Email: info@saulslight.org
Social media: @sauls_light

Graham’s Foundation
P.O. Box 755
1205 Lousiana Ave Perrysburg, OH 43552

USA

Phone: +1-888-466-2948

Phone: +1 855-424-6428
Contact: kelli@handtohold.org
Facebook: HANDtoHOLD
Website: www.handtohold.org

NICU Parent Network
1999 Main St Ste C-144 Madison, MS 39110
Phone: (601) 345-1772

Contact: connect@nicuparentnetwork.org

6905 N. Wickham Road Suite 302
Melbourne, FL 32940
USA

Phone:  +1 321 421 6957
Contact: info@preeclampsia.org
Facebook: PreeclampsiaFoundation
Website: www.preeclampsia.org

PO Box 250472
West Bloomfield Township
Michigan 48325

Family support: https://www.hopeforhie.org/parents/get-connected/

Clinicians & researchers: https://www.hopeforhie.org/clinciansandpartners/

Facebook: www.facebook.com/aupaprem/

Phone:+84 (0) 510 393 3943
Contact: suzanna@newbornsvietnam.org
Facebook: newbornsvietnam
Website: www.newbornsvietnam.org