Other content tagged: Partner activities
Know the facts in a world full of infectious respiratory viruses
Explore our corporate partner AstraZeneca's new one-stop web resource for respiratory virus knowledge and try the symptom comparator right away. It's that time of year again when coughs and colds are ubiquitous. But is it possible to have several respiratory diseases at the same time? Indeed, this phenomenon is known as coinfection although it is relatively rare due to the competition between the viruses during infection.[1-3] While infrequent, the consequences of coinfection may…
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RSV Policy and Advocacy Workshop in Munich
From 23 to 25 June 2023, parent and patient representatives from all over the world came together to exchange and learn about effective policy and advocacy activities and tools using the example of RSV in young children. It was a pleasure for EFCNI to host this workshop on policy and advocacy in the field of RSV in Munich from 23 to 25 June 2023. The three days were packed with practical exercises, interesting group discussions and workshops to help the…
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Platinum Partner AstraZeneca produced and funded “Sounds of RSV” to support awareness of symptoms
Our partnership with AstraZeneca is part of the EFCNI’s ongoing dedication to raising awareness amongst parents and healthcare professionals about the symptoms of RSV infection and how it can be prevented. With around 33 million acute lower respiratory infections caused each year, RSV infection is one of the most common causes of early life wheezing illness.[1,2] Babies who are born prematurely or who have underlying health issues such as heart or…
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EFCNI Welcomes Platinum Partner AstraZeneca to Raise Awareness of RSV
With EFCNI’s long standing leadership in preterm infants’ health and well-being, and AstraZeneca’s heritage in the RSV space, this partnership aims to increase awareness and educate parents and healthcare providers about the signs and symptoms of this challenging condition and available preventative options. In celebration of EFCNI’s platinum partnership with AstraZeneca, we had the opportunity to sit down with three leaders from AstraZeneca’s RSV team to ask about their work within the disease area. RSV is a very common,…
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New Romanian Project called “Purple Pages”
Let us introduce you Unu si Unu Association’s new project PURPEL PAGES (Ro: PAGINI MOV), Our partner parent organisation from Romania, has launched this project, to help parents find the best recovery centres for their children. PURPLE PAGES works a s a search platform that facilitates to find adequate follow-up centres. As there is no integrated system for follow up care for afflicted children in Romania, the aim was to create an information pool that also provides parents with…
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Charity project to support medical staff and newborns
Asociația Prematurilor donated to 5 maternities materials and equipment for protection against COVID-19 A contribution by Diana Gămulescu, Asociația Prematurilor The Romanian Association of Premature Babies, always near medical staff and newborns in maternity hospitals, came to an end with the project "Support for medical staff and newborns in maternity hospitals - protective equipment and materials against COVID 19", funded by the program "In stare de bine ”, supported by Kaufland Romania and implemented by the Foundation for Civil Society…
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Unseen Power –TED talk about the power of parent organisations
Oleksandra Balyasna, Founder and Chairwoman of our Ukrainian partnering parent organisation Early Birds / Ранні пташки, was a speaker at the renown TED Talks. Under the motto: ‘UnSeen Power – how to change the world through our decision and actions’, 100 attendees joined the regional TEDx event at the Bel etage Concert Hall in Kyiv, end of October. TED is a non-profit organisation devoted to spreading ideas in the form of short, powerful talks. TED was initiated in 1984 as…
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All things neonatal: professionals and parent representatives debate neonatal care in Hungary
A guest article by Livia Nagy The 17th Congress of the Hungarian Perinatology Society was organized in Siófok, Hungary by the Department of Obstetrics and Gynaecology and the newly-founded Department Group of Neonatology at Semmelweis University. On the first day of the conference, numerous insightful high-quality presentations were shown to the audience. The presentation by Anikó Kussinszky (Office of the Commissioner for Fundamental Rights, Head of Department of Equal Opportunities and Children's Rights) was certainly a highlight in the session…
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Putting prematurity on the agenda of the Brazilian Government
A guest article by Denise Suguitani, Executive Director of the Brazilian Parents of Preemies' Association Brazil is the 10th country in the world ranking of preterm birth. Since 2014 the nonprofit organisation 'Brazilian Parents of Preemies' Association', known as 'ONG Prematuridade.com' has been dedicating its work to address prematurity based on three pillars: raising awareness, prevention of preterm birth; permanent education to train health professionals, and advocating in the interests of families of preterm infants, acting in the area of…
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Preventing preterm births in Romania: new project by Asociatia Prematurilor
Asociatia Prematurilor, one of our collaboration partners in Romania, started a new project called ‘Caravan for pregnant women and mothers at risk’. The objective is to prevent preterm births in the country by providing preventive medical check-ups for pregnant women from disadvantaged areas in Romania. The initiative aims to evaluate and monitor pregnant women in ten disadvantaged localities in Romania, with a high infant mortality. Therefore, a mobile caravan accompanied by two doctors,…
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