Other content tagged: news
High Accolades for Asociatia Prematurilor in Romania
We are so pleased to hear that our partner organisation in Romania, Asociatia Prematurilor (The Romanian Association of Premature Babies), has been awarded the Civil Solidarity Prize by the European Economic and Social Committee (EESC). Congratulations for this well-deserved recognition of your hard work! Asociatia Prematurilor received the prize as well as 10,000 Euros in prize money for its project “Support for Medical Staff and Newborns in Maternity – Protective Equipment and Apparatus Against…
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Welcome to the EFCNI network, The TAPS Support Foundation
We are happy to announce that a new parent organisation has joined our network: The TAPS Support Foundation from the Netherlands! The TAPS Support Foundation is dedicated to raising awareness about TAPS, an acronym for Twin Anemia Polycythemia Sequence, and advocates in favour of changing the way monochrionic pregnancies are diagnosed and treated. TAPS is a rare disease that affects twins who share a placenta. Somewhere in the placenta, a small surface…
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RECAPpreterm Cohort Platform will soon be accessible
RECAPpreterm is a research project developing a unique data platform that will allow researchers to find and use data from very preterm and very low birth weight cohorts to answer research questions. The Cohort Platform will bring together extensive data from 20 population-based cohorts of children and young adults born very preterm from 13 European countries as well as further cohorts from around the world. End of January, the project’s General…
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Expert Roundtable on Safe Parenteral Nutrition
How to take care of safe parenteral nutrition - a life-saving treatment for preterm or severely sick infants EFCNI hosted two digital roundtables on parenteral nutrition with the aim to improve optimal nutritional care of preterm or severely sick babies who cannot be adequately fed by mouth or through a feeding tube. On this occasion, a multidisciplinary panel of German key experts in this field including neonatologists, pharmacists, hygiene experts, nurses and parent representatives as well as representatives of…
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Queen Elizabeth II honours Inga Warren
Inga Warren from NIDCAP Federation International has been appointed Commander of the Order of the British Empire (CBE) in the Queen's New Year's Honours for her services to preterm born babies. This is one of the highest accolades given and is a wonderful recognition, justly deserved, of her work and dedication to babies and their families. Inga Warren is a neonatal development specialist with extensive experience as an occupational therapist working with children of…
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World Prematurity Day 2020: “Together for babies born too soon – Caring for the future”
As we have been doing since 2008, EFCNI and its friends, supporters, and partner organisations celebrated World Prematurity Day on 17 November and used the day to raise awareness for the issue of preterm birth and the challenges it poses for babies born too soon and their families. The Motto This year’s theme was “Together for babies born too soon – Caring for the future”. It highlights that caring for preterm babies means, in fact, actively investing and empowering future…
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Delivering transformative action in paediatric pain: a Lancet Child & Adolescent Health Commission
Pain is a feeling every child and adolescent, will experience in their lives. Yet, unrecognised, undertreated, or poorly managed pain in childhood can have long-lasting negative consequences such as chronic pain, disability and distress. Even though there are several tools, expertise, and evidence available to handle childhood pain more successfully, pain is too often silenced and relief too infrequently given. Therefore, it is time for a change. The Lancet…
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Starker Start für kleine Helden 2020 – ein besonderes Jahr
Der Monat November neigt sich dem Ende zu und damit auch unsere Aktionen rund um Starker Start für kleine Helden. Auch im Jahr 2020 widmeten wir den Welt-Frühgeborenen-Tag am 17. November unseren kleinen Heldinnen und Helden um auf die schwierige Situation von Familien mit Frühgeborenen aufmerksam zu machen. Zusammen mit 170 neonatologischen Intensivstationen in Deutschland, Österreich und der Schweiz feierten wir die Stärke, den Mut und die Kraft mit der die kleinen Heldinnen und Helden und ihre Eltern die Herausforderungen…
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Online training helps preemies
An international team of researchers has now found that computerised training can support preterm children’s academic success. In their randomised controlled study “Fit for School”, the researchers compared two learning apps. The project at the University Hospital Essen and at Ruhr-Universität Bochum was funded by Mercator Research Center Ruhr (Mercur) with approximately 300,000 Euros for four years. Results have been published online as unedited manuscript in the journal Pediatric Research on 12 September 2020. Every 11. baby is born too…
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Recorded video of LSHTM-Charité Global Health Lecture is out now!
On World Prematurity Day EFCNI chairwoman Silke Mader gave a presentation at the Global Health Lecture of LSHTM-Charité - a lecture focusing on the effects of COVID19 on deliveries and neonatal health worldwide. What an inspiring event and exceptional work! Join the recorded LSHTM-Charité Global Health Lecture to hear the latest on preterm births during the pandemic and what we can do to mitigate harm! The recorded video of the Global…
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