Other content tagged: news
Preterm birth – how can communication be improved with parents?
Shock, trauma, grief, vulnerability, worry – these are just a few words to describe how parents of preterm born babies feel when faced with the often unexpected situation of the early birth of their child. Add to this the need to make sometimes urgent decisions about the future of an early term baby – and this often does not make for fluid and smooth communication between parents and the medical professionals in charge of the care of their baby. Such…
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Supporting Kangaroo Care across Ukraine
We want to take the opportunity to congratulate our partner parent organisation in Ukraine, “Ranni Ptashky – Early Birds” on another successfully completed project to improve the situation of preterm born babies in Ukraine. Last year in November, “Ranni Ptashky” partnered with Kimberly-Clark Ukraine to use the global momentum around World Prematurity Day 2020 for positive change and improve the situation in NICUs across Ukraine. Kimberly-Clark Ukraine sold nappies from TM Huggies, donating 5 Ukrainian Hryvnia (HUA) per package to…
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Paediatric clinical trials: industry and non-industry bringing different strengths together
Clinical trials are an essential part of advancing knowledge and improving healthcare worldwide. Advances in paediatric research across the globe to improve the lives of babies, children and young people have dramatically reduced rates in morbidity and mortality and increased the quality of life, for example, reducing sudden infant death, increasing the life expectancy for children with thalassemia, cystic fibrosis etc. Clinical trials within the paediatric population can be conducted as…
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Making infant- and family-centred developmental care a reality – constructions for a family room well underway at Dritter Orden hospital in Munich
Implementing infant- and family-centred developmental care at hospitals not only depends on the staff’s support of more inclusive practices. It also requires physical changes in how buildings are constructed and how rooms are partitioned and furnished. These changes can be fairly costly and often take time to implement because financial and architectural challenges must be considered and negotiated first. This is why we are delighted to report that the Munich hospital Dritter Orden has…
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Pregnancy and childbirth in times of COVID-19: Parent organisation “Ranni Ptashky – Early Birds” launches webinar series in Ukraine
The global COVID-19 pandemic has posed particular challenges to families around the world, especially those who had or are expecting a baby in the midst of it. Hospitals put safety measures into place in order to keep staff and patients from contracting and spreading COVID-19, at times with harsh consequences. For new and expecting parents, this has made pregnancy, childbirth, and life postpartum more difficult to navigate and added further levels of stress…
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Neonatal Nurses Association (NNA) gathers high-level experts on virtual conference
As the pandemic continues and conferences and workshops are still being held digitally the Neonatal Nurses Associations pulled off a virtual conference with a great line up of sessions and speakers. Under the motto "Embracing Change", the event focused on the many contemporary tasks and challenges in newborn care, of which some have been significantly intensified by the pandemic. EFCNI Chairwoman Silke Mader also had the opportunity to share the parents' perspective on neonatal health and care procedures. Moreover, in…
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FINE trainings in Hungary: How to train medical staff in times of a pandemic
A guest article by Livia Nagy Every year more than 8,000 newborns begin their lives in premature intensive care units of different levels in Hungary. The pillars of family-centred care are absent from numerous units, one of the most significant of these being the lack of opportunities for the 24-hour presence of parents and their involvement in the care of their children. In 2019 the Government of Hungary set family-friendly values and the implementation of family and child-friendly approaches as…
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High Accolades for Asociatia Prematurilor in Romania
We are so pleased to hear that our partner organisation in Romania, Asociatia Prematurilor (The Romanian Association of Premature Babies), has been awarded the Civil Solidarity Prize by the European Economic and Social Committee (EESC). Congratulations for this well-deserved recognition of your hard work! Asociatia Prematurilor received the prize as well as 10,000 Euros in prize money for its project “Support for Medical Staff and Newborns in Maternity – Protective Equipment and Apparatus Against…
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Welcome to the EFCNI network, The TAPS Support Foundation
We are happy to announce that a new parent organisation has joined our network: The TAPS Support Foundation from the Netherlands! The TAPS Support Foundation is dedicated to raising awareness about TAPS, an acronym for Twin Anemia Polycythemia Sequence, and advocates in favour of changing the way monochrionic pregnancies are diagnosed and treated. TAPS is a rare disease that affects twins who share a placenta. Somewhere in the placenta, a small surface…
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RECAPpreterm Cohort Platform will soon be accessible
RECAPpreterm is a research project developing a unique data platform that will allow researchers to find and use data from very preterm and very low birth weight cohorts to answer research questions. The Cohort Platform will bring together extensive data from 20 population-based cohorts of children and young adults born very preterm from 13 European countries as well as further cohorts from around the world. End of January, the project’s General…
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