info@efcni.org

Other content tagged: news

Welcome, Paul, to Lithuania!

A guest article by Asta Speičytė-Radzevičienė, head of Lithuanian parent organisation Neišnešiotukas Last year, in 2022, about 1,200 preterm babies were born in Lithuania. However, the worldwide birth rate has been steadily declining for over 50 years. Every baby matters! Thanks to the collaboration with AmerisourceBergen, Lithuania received an innovative simulator Paul which precisely recreates a preterm 27-weeks-old baby. Such an innovative solution, which is created in Austria by SIMCharacters, contributes to the education…
Read more

EFCNI auf der GNPI

EFCNI auf der GNPI  49 Jahrestagung der Gesellschaft für Neonatologie und Pädiatrische Intensivmedizin (GNPI) tagt in Hamburg mit vielseitigem und vielschichtigem Programm (see English article below) Mit 2000 Teilnehmenden verzeichnete die GNPI in diesem Jahr einen großen Zulauf von  neonatologischen und pädiatrischen Fachkräften. Drei Tage lange wurde zu pflegerischen und wissenschaftlichen Themen referiert und diskutiert. Dabei ergänzten auch internationale Beiträge das Programm. EFCNI hatte die Möglichkeit aktiv zu dem interessanten Kongressprogramm beitragen zu können. So war EFCNI-Gründerin und Vorsitzende Silke…
Read more

Guest article by Sandra Walther: Pre-eclampsia experience of an affected mother

Die deutsche Fassung finden Sie hier Unfortunately, until today, only very few women know enough about the dangerous pregnancy complication of pre-eclampsia, especially how and when they should act. Almost every woman knows someone who has experienced pre-eclampsia, but too little is said about the effects of this complication, the symptoms and the importance of not being afraid to consult a healthcare professional. Expectant mothers are not informed enough about the possible long-term health consequences. Medical professionals would also have…
Read more

Gastbeitrag von Sandra Walther: Erfahrungen einer durch Präeklampsie betroffenen Mutter

Find the English article here Leider wissen bis heute die wenigsten Frauen über die gefährliche Schwangerschaftskomplikation Präeklampsie Bescheid, insbesondere wie und wann sie handeln sollten. Fast jede Frau kennt jemanden, der eine Präeklampsie erlebt hat, jedoch wird zu wenig darüber gesprochen, wie sich die Komplikation auswirkt, welche Beschwerden auftreten und wie wichtig es ist, keine Hemmungen zu haben zum Arzt zu gehen. Über die möglichen gesundheitlichen Spätfolgen werden die werdenden Mamas zu wenig aufgeklärt. Auch das medizinische Fachpersonal müsste bei…
Read more

Transitional care in focus: Considering the needs of preterm babies and their families

Guest article by Lívia Nagy Bonnard, founding member of “Melletted a helyem Egyesület” – “Right(s) Beside You Association” in English – and a member of the Parent Advisory Board of EFCNI as well as a member of the Parent, Patient and Public Advisory Board of the ESCNH. 30th United European Gastroenterology Conference in Vienna The 30th United European Gastroenterology Conference took place in Vienna at the beginning of October 2022. The aim of the conference was to discuss and share research…
Read more

13th International Conference on Kangaroo Mother Care in Madrid

From 21 to 24 November 2022, experts from all over the world came together to exchange knowledge regarding the latest Kangaroo Mother Care (KMC) practices. EFCNI was honoured to attend the conference on-site and was thrilled to meet old friends and new ones and to work together with the KMC community towards the best possible care for preterm born babies and their families. It was a pleasure to attend the 13th International Conference on Kangaroo Mother Care from 21 to…
Read more

Platinum Partner AstraZeneca produced and funded “Sounds of RSV” to support awareness of symptoms

  Our partnership with AstraZeneca is part of the EFCNI’s ongoing dedication to raising awareness amongst parents and healthcare professionals about the symptoms of RSV infection and how it can be prevented. With around 33 million acute lower respiratory infections caused each year, RSV infection is one of the most common causes of early life wheezing illness.[1,2] Babies who are born prematurely or who have underlying health issues such as heart or…
Read more

A heavy loss: in sorrow and gratitude we remember Professor Heidelise Als

Professor Heidelise (Heidi) Als was a visionary and trailblazer for Infant and Family-Centred Developmental Care (IFCDC) and as the founder of NIDCAP (Neonatal Individualised Developmental Care and Assessment Program) and the associated foundation, she has made a pioneering and lasting contribution to improving the health outcomes of hospitalised infants worldwide. She passed away unexpectedly in August, leaving a big void. Heidelise Als developed her interest in the interplay between environment and…
Read more

Congress season 2022: meet EFCNI at the EAPS Congress in Barcelona!

After two years of digital meetings, congresses, and conferences, we are delighted to be participating in the 9th Congress of the European Academy of Paediatric Societies (EAPS) from 7-11 October 2022 on-site in Barcelona. EFCNI will be contributing to the diverse congress programme with two sessions focusing on the patient- and parent perspective in neonatal care. Infant and family-centred developmental care before and during the COVID-19 pandemic (EFCNI Session) Sunday, 9 October 2022, 15:00; Interdisciplinary Session 19 The COVID-19 pandemic…
Read more

Proposal for EU regulation on substances of human origin OUT NOW!

The European Commission has published a proposal for a regulation on substances of human origin – including human milk. EFCNI welcomes the proposal for a regulation on substances of human origin – including human milk – which has the potential to bring important improvements for vulnerable infants in need of donor human milk. In case this proposal gets adopted by the European Parliament and the Council, the regulation will replace the Tissues and Cells…
Read more