Other content tagged: news
Celebrating World Prematurity Day 2023 – with a congress and an award
Guest article by Lucie Žáčková, Chairwoman and Executive Director of parent organisation Nedoklubko in the Czech Republic. World Prematurity Day was first celebrated in the Czech Republic in 2010. This year marked the 13th anniversary of the event – and the first time after a three-year break that we could finally meet again in person, share experiences, and swap stories. Nedoklubko’s first congress The team of Nedoklubko, the Czech patient and parent organisation, decided to organise a special…
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Putting the needs of preterm babies on the political agenda in Romania
Guest article by Diana Gamulescu, Co-founder and President of Asociatia Prematurilor in Romania. Preterm birth as health challenge in Romania In Romania, over 20,000 babies are born preterm each year, i.e. about 10% of all births. Experts recognise the major challenges preterm births pose for public health and the neonatal system in the country. Risks associated with being born too soon include an increased mortality rate and severe disability. In addition, many of these children experience neurodevelopmental difficulties, such as…
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Spenden statt Geschenke
Europaabgeordnete Angelika Niebler unterstützt SAVE-Projekt am LMU Klinikum (see English translation below) „Geben ist seliger denn Nehmen“ – so kann man die großzügige und großherzige Tat überschreiben, die der Neonatologie…
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Angels for parents with empty arms
Guest article by Veronika Kmetóny Gazdová of our Slovakian partner from parent organisation Malíček. Preterm birth is a risk for both the woman and the baby. The fragility of life is seen especially in those families whose are leaving the hospital with empty arms. Malíček initiated a project to commemorate those lives as well as support families in their grief. Malíček donates the memorial called “little angels” to perinatal centres across Slovakia. The project builds on the activities of…
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Meet EFCNI at the jENS Congress
Fifth Congress of joint European Neonatal Societies welcomes you to Rome It is our pleasure and honour to be the co-organiser of the jENS Congress for the fifth time. This congress will always be a special one for us, as it brings together health professionals and parent representatives to share and learn from each other. We are looking forward to welcoming you to Rome at our booth and in our sessions and workshops. Mark your calendar so you won't miss…
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PICAPP – An app to support the development of preterm babies
Guest article by Livia Nagy, founder of “Right(s) beside you Association” (“Melletted a helyem Egyesület”) One in 11 newborns in Hungary is born preterm. Families are caught unprepared facing preterm birth and one of the main objectives of the “Right(s) beside you Association” (“Melletted a helyem Egyesület”) is to support parents in this unexpected life situation from the very beginning in the NICU. Lack of information but also fears from inappropriate internet materials further complicate the situation for parents. The…
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RSV Policy and Advocacy Workshop in Munich
From 23 to 25 June 2023, parent and patient representatives from all over the world came together to exchange and learn about effective policy and advocacy activities and tools using the example of RSV in young children. It was a pleasure for EFCNI to host this workshop on policy and advocacy in the field of RSV in Munich from 23 to 25 June 2023. The three days were packed with practical exercises, interesting group discussions and workshops to help the…
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Welcome, Paul, to Lithuania!
A guest article by Asta Speičytė-Radzevičienė, head of Lithuanian parent organisation Neišnešiotukas Last year, in 2022, about 1,200 preterm babies were born in Lithuania. However, the worldwide birth rate has been steadily declining for over 50 years. Every baby matters! Thanks to the collaboration with AmerisourceBergen, Lithuania received an innovative simulator Paul which precisely recreates a preterm 27-weeks-old baby. Such an innovative solution, which is created in Austria by SIMCharacters, contributes to the education…
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EFCNI auf der GNPI
EFCNI auf der GNPI 49 Jahrestagung der Gesellschaft für Neonatologie und Pädiatrische Intensivmedizin (GNPI) tagt in Hamburg mit vielseitigem und vielschichtigem Programm (see English article below) Mit 2000 Teilnehmenden verzeichnete die GNPI in diesem Jahr einen großen Zulauf von neonatologischen und pädiatrischen Fachkräften. Drei Tage lange wurde zu pflegerischen und wissenschaftlichen Themen referiert und diskutiert. Dabei ergänzten auch internationale Beiträge das Programm. EFCNI hatte die Möglichkeit aktiv zu dem interessanten Kongressprogramm beitragen zu können. So war EFCNI-Gründerin und Vorsitzende Silke…
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Guest article by Sandra Walther: Pre-eclampsia experience of an affected mother
Die deutsche Fassung finden Sie hier Unfortunately, until today, only very few women know enough about the dangerous pregnancy complication of pre-eclampsia, especially how and when they should act. Almost every woman knows someone who has experienced pre-eclampsia, but too little is said about the effects of this complication, the symptoms and the importance of not being afraid to consult a healthcare professional. Expectant mothers are not informed enough about the possible long-term health consequences. Medical professionals would also have…
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