Other content tagged: news
Development of a WHO Core Outcome Set (COS) for maternal and perinatal health for the next epidemic or pandemic: involvement of EFCNI in the process
EFCNI contributes to efforts by the World Health Organization (WHO) to develop a Core Outcome Set (COS) for maternal and perinatal health in anticipation of future epidemics or pandemics. Joining an international expert group, led by EFCNI Chairwoman Silke Mader, we advocate for considering and incorporating crucial patient perspectives. Maternal and perinatal health are often directly and indirectly affected during outbreaks of infectious diseases. The consequences can be dire. Women and their families face uncertainty and confusion as access to…
Read more
Putting the preterm infant in the centre of all care: Impressions from Erasmus Hospital, Brussels
Guest article by Lívia Nagy Bonnard, founding member of “Melletted a helyem Egyesület” – “Right(s) Beside You Association” in English – and a member of the Parent, Patient and Public Advisory Board of the European Standards of Care for Newborn Health (ESCNH). During each NICU visit, I think to myself, “If my son had been treated here, in this ward, as an extremely preterm baby, how different – or better – would my NICU experience have been? Would there have…
Read more
Know the facts in a world full of infectious respiratory viruses
Explore our corporate partner AstraZeneca's new one-stop web resource for respiratory virus knowledge and try the symptom comparator right away. It's that time of year again when coughs and colds are ubiquitous. But is it possible to have several respiratory diseases at the same time? Indeed, this phenomenon is known as coinfection although it is relatively rare due to the competition between the viruses during infection.[1-3] While infrequent, the consequences of coinfection may…
Read more
Celebrating World Prematurity Day 2023 – with a congress and an award
Guest article by Lucie Žáčková, Chairwoman and Executive Director of parent organisation Nedoklubko in the Czech Republic. World Prematurity Day was first celebrated in the Czech Republic in 2010. This year marked the 13th anniversary of the event – and the first time after a three-year break that we could finally meet again in person, share experiences, and swap stories. Nedoklubko’s first congress The team of Nedoklubko, the Czech patient and parent organisation, decided to organise a special…
Read more
Putting the needs of preterm babies on the political agenda in Romania
Guest article by Diana Gamulescu, Co-founder and President of Asociatia Prematurilor in Romania. Preterm birth as health challenge in Romania In Romania, over 20,000 babies are born preterm each year, i.e. about 10% of all births. Experts recognise the major challenges preterm births pose for public health and the neonatal system in the country. Risks associated with being born too soon include an increased mortality rate and severe disability. In addition, many of these children experience neurodevelopmental difficulties, such as…
Read more
Spenden statt Geschenke
Europaabgeordnete Angelika Niebler unterstützt SAVE-Projekt am LMU Klinikum (see English translation below) „Geben ist seliger denn Nehmen“ – so kann man die großzügige und großherzige Tat überschreiben, die der Neonatologie…
Read more
Angels for parents with empty arms
Guest article by Veronika Kmetóny Gazdová of our Slovakian partner from parent organisation Malíček. Preterm birth is a risk for both the woman and the baby. The fragility of life is seen especially in those families whose are leaving the hospital with empty arms. Malíček initiated a project to commemorate those lives as well as support families in their grief. Malíček donates the memorial called “little angels” to perinatal centres across Slovakia. The project builds on the activities of…
Read more
Meet EFCNI at the jENS Congress
Fifth Congress of joint European Neonatal Societies welcomes you to Rome It is our pleasure and honour to be the co-organiser of the jENS Congress for the fifth time. This congress will always be a special one for us, as it brings together health professionals and parent representatives to share and learn from each other. We are looking forward to welcoming you to Rome at our booth and in our sessions and workshops. Mark your calendar so you won't miss…
Read more
PICAPP – An app to support the development of preterm babies
Guest article by Livia Nagy, founder of “Right(s) beside you Association” (“Melletted a helyem Egyesület”) One in 11 newborns in Hungary is born preterm. Families are caught unprepared facing preterm birth and one of the main objectives of the “Right(s) beside you Association” (“Melletted a helyem Egyesület”) is to support parents in this unexpected life situation from the very beginning in the NICU. Lack of information but also fears from inappropriate internet materials further complicate the situation for parents. The…
Read more
RSV Policy and Advocacy Workshop in Munich
From 23 to 25 June 2023, parent and patient representatives from all over the world came together to exchange and learn about effective policy and advocacy activities and tools using the example of RSV in young children. It was a pleasure for EFCNI to host this workshop on policy and advocacy in the field of RSV in Munich from 23 to 25 June 2023. The three days were packed with practical exercises, interesting group discussions and workshops to help the…
Read more
