Other content tagged: news
Stronger together: Main Belgian associations launch the Zero Separation Coalition
Guest article by Michel Collart, Noah's Ark Belgium. Extra boost in May: Noah’s Ark Belgium convinced partner associations VVOC, Cokoen and Odisee to promote Zero Separation. Mid-May the coalition held the Zero Separation Tour Belgium featuring 3 conferences with Nils Bergman in 3 major NICUs (Antwerp, Leuven & Genk). Over 200 neonatal professionals attended the “Nurturescience a case for Zero Separation” conference. In Leuven we had the chance to host Mrs. Bieke Verlinden representing the Minister of Health and Mr. Els…
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NGO Prematuridade.com lauches a National Intersectoral Plan dedicated to the cause of prematurity in Brazil
Guest article by Denise Suguitani, founder and Executive Director of ONG Prematuridade, our partner parent organisation in Brazil. In the year in which it celebrates ten years of work in favour of the cause of prematurity, the Brazilian Parents of Preemies’ Association (NGO Prematuridade.com) launches an initiative inspired by the strength of the families of these babies and the sensitivity of professionals working in neonatology: the National Intersectoral Plan for Prematurity (PNIAP, as…
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Survey: Adults born preterm with respiratory dysfunction
Calling all adults born preterm: Help us shape the future of prematurity research! EFCNI recently joined a project called “EMPOWER: Real-world patient research in prematurity and respiratory diseases” by Chiesi, a survey for adults born preterm. The survey aims to explore the perspective of patients with asthma, COPD or BPD who were born preterm to assess their awareness level of their medical history from an early age and to gather information about their interactions with various physicians. Join the…
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EFCNI auf der GNPI (2024)
EFCNI auf der GNPI Heimspiel in München bei der 50. Jahrestagung der Gesellschaft für Neonatologie und Pädiatrische Intensivmedizin (GNPI) mit einem bunten und breit gefächerten Programm (see English article below) Tag 1 Ein Highlight des erstes Tag war die Session zu „Baulichen Benefits in der Neo für Patient:innen und Teams“, deren Vorsitz Silke Mader, EFCNI-Gründerin und Vorsitzende, und Barbara Mitschdörfer vom Bundesverband das frühgeborene Kind e.V. hatten. Den Auftakt machte Barbara Mitschdörfer vom…
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Guaranteed by the state: Empowering families to know and exercise their rights
Guest article by Oleksandra Balyasna, Head of partner parent organisation "Early Birds" in Ukraine and member of the EFCNI Parent and Patient Advisory Board. Knowing your rights guaranteed and provided by the State can decrease the stress among parents of preterm babies and improve health outcomes for both mothers and newborns. Questions to think about for every parent organisation: Does your patient network know their rights and where to check this information? Do you know what to do when your…
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Making skin-to-skin care a reality for families in need with “ConTact”
Guest article by Professor Concepción Gómez Esteban, Universidad Complutense, Madrid, Spain, and President of APREM, one of EFCNI’s esteemed partner parent organisations in Spain. In 2022, APREM initiated an innovative programme in Spain called “ConTact”, aimed at facilitating skin-to-skin care between preterm infants and their families as well as supporting those families when going back home. We focused particularly on the most vulnerable tiny patients, namely preterm babies who, in addition to medical challenges,…
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Neonatal care through the ages: The impressive journey of infant and family-centred developmental care in Denmark
A guest article by Sarah Fügenschuh When we imagine modern neonatal care, in industrialised nations in particular, we might think of Neonatal Intensive Care Units (NICUs) equipped with state-of-the-art technical and medical appliances, the involvement of parents in the care of their hospitalised child, Kangaroo Mother Care, patient-centred treatment and follow-up care, and a relationship between healthcare professionals and parents at eye level. If one were to imagine a NICU in Denmark to be like this, one would not be…
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Development of a WHO Core Outcome Set (COS) for maternal and perinatal health for the next epidemic or pandemic: involvement of EFCNI in the process
EFCNI contributes to efforts by the World Health Organization (WHO) to develop a Core Outcome Set (COS) for maternal and perinatal health in anticipation of future epidemics or pandemics. Joining an international expert group, led by EFCNI Chairwoman Silke Mader, we advocate for considering and incorporating crucial patient perspectives. Maternal and perinatal health are often directly and indirectly affected during outbreaks of infectious diseases. The consequences can be dire. Women and their families face uncertainty and confusion as access to…
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Putting the preterm infant in the centre of all care: Impressions from Erasmus Hospital, Brussels
Guest article by Lívia Nagy Bonnard, founding member of “Melletted a helyem Egyesület” – “Right(s) Beside You Association” in English – and a member of the Parent, Patient and Public Advisory Board of the European Standards of Care for Newborn Health (ESCNH). During each NICU visit, I think to myself, “If my son had been treated here, in this ward, as an extremely preterm baby, how different – or better – would my NICU experience have been? Would there have…
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Know the facts in a world full of infectious respiratory viruses
Explore our corporate partner AstraZeneca's new one-stop web resource for respiratory virus knowledge and try the symptom comparator right away. It's that time of year again when coughs and colds are ubiquitous. But is it possible to have several respiratory diseases at the same time? Indeed, this phenomenon is known as coinfection although it is relatively rare due to the competition between the viruses during infection.[1-3] While infrequent, the consequences of coinfection may…
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