Other content tagged: news
The little hero’s house – a holistic follow-up concept from the Netherlands
A guest article by Dr Angelique Haringsma and Hiltje Heyman The idea was born along the football field. Our sons were in the same team and we were not only cheering for them because, during our conversations, we felt the same passion as we were both working in the care and cure section. Angelique Haringsma as a neonatologist and Hiltje Heyman as a family coach. The strange thing is that, while we are both working with premature babies and their…
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COVID-19 – Possible risks during pregnancy: An interview with Doctor Dietmar Schlembach
Doctor Schlembach, does it make sense to test every pregnant woman for corona? No, that is not necessary. Screening recommendations vary from country to country, so please check the recommendations from your health care administration. But generally it is recommended that only persons with symptoms suggestive for CoVid 19 shall be tested. Generally, pregnant women do not appear to be more severely unwell than the general population if they develop COVID-19. As…
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GLANCE: Global Call to Action for Newborn Care – Japan is taking action
In November 2019, the Global Call to Action for Newborn Care was published. In 8 political demands, the Call to Action strives to advance the care for babies born too soon, too small or too sick and the support given to their families. Up to now the Global Call to Action for Newborn Care is available in 22 languages, Japanese being one of them. The International Communication Committee of the Japan Academy of Neonatal Nurses (JANN), supported us to translate…
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COVID-19 – Risks for preterm born infants: An interview with Professor Doctor Christoph Bührer
COVID-19 and its distribution is on everyone‘s lips and speculations run high. Especially older people and persons with a pre-existing medical condition appear to be develop a serious illness more often than others (WHO). This might leave parents-to-be, parents of preterm born infants and former preterms worrying. We talked to Professor Doctor Christoph Bührer, Medical Director Department of Neonatology, Charité Berlin about the risks he sees for unborn babies, preterm born infants and preterm born adults. …
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Workshop: Implementation of the European Standards of Care for Newborn Health
What can be done to implement the European Standards of Care for Newborn Health (ESCNH)? This is a question that does not only concern EFCNI but also national parent organisations. At the ESCNH workshop in Munich parent representatives from all over Europe, presented their plans and actions to implement the standards in their country, giving each other new ideas and support. EFCNI started to organise the workshops regularly to support the parent organisations network…
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11 Months – 11 Topics – 1 Goal
In its 5th year, our communication campaign 11 Months – 11 Topics continues to provide overviews on the 11 different standard topics but will also offer new, interactive features that shall support the dissemination and implementation process. The campaign 11 Months – 11 Topics took off in 2016 and aims at reaching out explicitly to health professionals and policymakers. Yet, also laypersons who are to benefit from the dissemination of the standards, in the long run, namely the preterm babies…
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EFCNI’s global initiative The Global Alliance for Newborn Care – GLANCE – is taking shape
One year ago, we went public about the founding of GLANCE, the Global Alliance for Newborn Care for the first time and shared the news about this big endeavour with our network. A lot has happened since then and we were delighted to present with our supporters and fellow organisations, how much we were able to realise in regards to our primary objectives with GLANCE. It was our pleasure to present the many small and big steps we managed to…
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European Standards of Care for Newborn Health – One year anniversary
We reached a lot, it was a long way. In November it has been exactly one year since the European Standards of Care for Newborn Health had been officially launched in the European Parliament in Brussels. 5 years of hard preparing work had come to a close. Yet, this marked the beginning of the next big steps: disseminating and implementing the standards! For a year, we have been on the roll with the "Standards roadshow" all over Europe - and…
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Become a patient expert and play an active role in the development of clinical trials
c4c(conect4children) is a large collaborative European network that aims to facilitate the development of new drugs and other therapies for the entire paediatric population. In this sense, the voices of children, young people and their families are a pivotal part of the innovative approach of c4c project. It places patients at the centre and will assign them an active role in the development of the different clinical trials that are going to be conducted…
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