Other content tagged: news research
Empower Parents – Enable Breastfeeding: EFCNI supports World Breastfeeding Week 2019
To support this year’s World Breastfeeding Week, EFCNI is reaching out to healthcare experts AND mothers as well as their partners with a survey, asking for your experiences, advice, challenges and needs in regards to breastfeeding. The results of the survey will be evaluated (anonymously) and displayed on an infographic. During World Breastfeeding Week the infographic will be shared on our website and social media accounts. Please klick on the respective links…
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EMA drafts guideline for medicinal products containing genetically modified cells – Feedback wanted!
The European Medicines Agency has released a draft guideline on quality, non-clinical and clinical aspects of medicinal products containing genetically modified cells for public consultation. This guideline aims at defining scientific principles and shall provide guidance for the development and evaluation of medicinal products containing genetically modified cells intended for use in humans and presented for marketing authorisation. The guideline focuses on the quality, nonclinical aspects and safety and efficacy requirements of genetically modified cells developed as medicinal products. Please…
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Standards featured in The Lancet Child & Adolescent Health
The European Standards of Care for Newborn Health and some of the experts who contributed to the development of the standards, are featured in a new publication by The Lancet Child & Adolescent Health on “Family-centred care in the NICU”. The topic of infant- and family-centred developmental care is one of the greatest concerns of the European Foundation for the Care of Newborn Infants (EFCNI) and, as the editors put…
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Standards presented in Brussels and Kiev
The international ‚roadshow‘ about the European Standards of Care for Newborn Health is in full swing. Here is an update of the latest presentations about the project: On 16 May Dr Johanna Walz from EFCNI presented the standards and the Call to Action for Newborn Health in Europe at the NIDCAP (abbreviated for Newborn Individualized Developmental Care and Assessment Program) meeting on “Infant- and family-centred care”…
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Series of RECAP cohorts – part 2: the cohorts of the EPICure Studies in the United Kingdom and Ireland
In our new series about cohorts of the EU-funded project „Research on European Children and Adults born Preterm“ (RECAP preterm), we recently reported about the ESTONIA I & II cohorts. We are happy to present you a second example, the cohorts of the EPICure studies in the United Kingdom and Ireland. Find out more in this article by the current team of lead researchers, Professor Neil Marlow, Professor Elizabeth Draper, and Dr Samantha Johnson. “EPICure” is a series of studies…
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Very preterm babies: Large differences in the use of specialist health services in different European countries
Very preterm babies (born earlier than 32 weeks gestational age) suffer more frequently from various impairments, such as motor, hearing, vision, developmental and cognitive impairments, compared to term babies, and the earlier the baby is born, the higher the risk of facing difficulties. As a matter of fact, of all babies born extremely preterm (22-27 weeks), between 21% and 35% suffer from moderate to severe neurological disability in childhood, and 40% of babies born extremely preterm have a severe health…
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EFCNI supports study by c4c research collaboration on paracetamol in preterm babies
Since last year, EFCNI has been involved as a third party representing the voice of patients and parents in the new conect4children (c4c) consortium, a research collaboration to build a European paediatric clinical trial network that aims to facilitate the development of new drugs and other therapies for the entire paediatric population. c4c now announced that it selected its first portfolio of pan-European paediatric studies aimed at advancing the understanding of high priority medicines commonly used in babies, children, and young people in Europe.…
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New series on cohorts of the Research on European Children and Adults born Preterm (RECAP preterm) project
Our new series presents the cohorts of the EU-funded project „Research on European Children and Adults born Preterm“ (RECAP preterm), which aims at contributing to a better understanding on the long-term effects of preterm birth and thus to an improvement of the follow-up of these children. A research cohort is a group of people who share a defining characteristic, e.g. in the case of RECAP preterm, the cohorts consist of children (and later adults) born very preterm or with very…
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Euro-Peristat – more and better data for perinatal health
Euro-Peristat is a European research project that aims to improve perinatal health. The project collaborators and contributing experts developed common tools to assess perinatal health problems and health care in Europe and to monitor changes over time. These data are needed by clinicians, policy makers and parents for evaluating the situation in their countries and for making decisions about the health and healthcare of pregnant women and newborns. Euro-Peristat makes data available in reports, on their website and in scientific…
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Training for parent organisations: workshop on the implementation of the standards
Training and knowledge about the European Standards of Care for Newborn Health are key for their implementation in the different countries. This is why EFCNI is thrilled to welcome another group of parent organisation representatives from 12 countries for a “Level III” training workshop (22 to 23 February) in Munich – again with an extra “crash course” for parent organisations who have never attended a workshop on the standards before. The workshop offers a broad perspective on aspects that are…
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