EFCNI publications list

Journal articles

2024

  • Clinical Practice Guideline for Red Blood Cell Transfusion Thresholds in Very Preterm Neonates. JAMA Network Open. 2024;7(6):e2417431. Deschmann E, Dame C, Sola-Visner MC, Fustolo-Gunnink SF, Guyatt GH, Mangal Patel R, Stanworth SJ, for the Neonatal Transfusion Network, (Matthäus V, European Foundation for the Care of Newborn Infants, listed as contributor). doi:10.1001/jamanetworkopen.2024.17431
  • The Multifaceted Burden of Respiratory Syncytial Virus (RSV) Infections in Young Children on the Family: A European Study. Infectious diseases and therapy. 2024 May 20. Trautmannsberger I, Plagg B, Adamek I, Mader S, de Luca D, Esposito S, Silfverdal SA, Zimmermann LJI, Tischer C, the ResQ Family study group. doi: 10.1007/s40121-024-00989-0
  • Every Newborn Counts, Everywhere: Statement from the 2023 Joint European Neonatal Societies’ (jENS) Congress. Newborn 2024;3(1): 1–2. Lawn JE, Ehret DEY, Mutema T, Stevenson A, Walker K, Storari L, de Boode WP, Mader S, Moretti C, Roehr CC, Saugstad OD. DOI: 10.5005/jp-journals-11002-0087
  • Reevaluating the FDA’s warning against the use of probiotics in preterm neonates: A societal statement by ESPGHAN and EFCNI. Journal of Pediatric Gastroenterology and Nutrition. 2024 Apr 4. Van den Akker CHP, Embleton ND, Lapillonne A, Mihatsch WA, Salvatore S, Canani RB, Dinleyici EC, Domellöf M, Guarino A, Gutiérrez-Castrellón P, Hojsak I, Indrio F, Mosca A, Orel R, Van Goudoever JHB, Weizman Z, Mader S, Zimmermann LJI, Shamir R, Vandenplas Y, Szajewska H. https://doi.org/10.1002/jpn3.12204
  • Omega-3 fatty acid supply in pregnancy for risk reduction of preterm and early preterm birth. American Journal of Obstetrics & Gynecology MFM. 2024;6(2):101251. Cetin I, Carlson SE, Burden C, Da Fonseca EB, Di Renzo GC, Hadjipanayis A, Harris WS, Kumar KR, Olsen SF, Mader S, McAuliffe FM, Muhlhausler B, Oken E, Poon LC, Poston L, Ramakrishnan U, Roehr CC, Savona-Ventura C, Smuts CM, Sotiriadis A, Koletzko B. https://doi.org/10.1016/j.ajogmf.2023.101251
  • Reassessing and Extending the European Standards of Care for Newborn Health: How to Keep Reference Standards in Line with Current Evidence. Children 2024; 11(2):179. Geiger I, Kostenzer J, Matthäus V, on behalf of the ESCNH Chair Committee, Mader S, Zimmermann LJI. https://doi.org/10.3390/children11020179
  • Maternal Wellbeing Five Years after a Very Preterm Delivery: Prevalence and Influencing Factors in a European Cohort. Children 2024; 11(1):61. Wohlers L, Maier RF, Cuttini M, Wilson E, Benhammou V, Lebeer J, Laroche S, Sarrechia I, Petrou S, Thiele N, Zeitlin J & Aubert AM on behalf of the SHIPS Research Group. https://doi.org/10.3390/children11010061

2023

  • Prophylactic Intravenous Acetaminophen in Extremely Premature Infants: Minimum Effective Dose Research by Bayesian Approach. Pediatr Drugs 2023. Aikio O, Baruteau A, Bouazza N, Cambonie G, Diallo A, Flamant C, Froelicher-Bournaud L, Gascoin G, Hallman M, Kallio J, Levoyer L, Lui G, Lumia M, Patkai J, Rideau A, Roze J, Tauzin M, Tortigue M, Treluyer J, Walsh-Papageorgiou A. doi : 10.1007/s40272-023-00602-w
  • RSV – bessere Daten und mehr Schutz. OPG – Operation Gesundheitswesen – Spezial 2023; Presseagentur Gesundheit; Mader S. https://www.pa-gesundheit.de/opg/opg-spezial.html
  • Das Respiratorische Synzytialvirus – Krankheitslast, Chancen und Herausforderungen bei Kindern im D-A-CH-Raum. Handlungsempfehlungen für Deutschland, Österreich und die Schweiz. Kinderkrankenschwester 2023; 10. Bösl S, Fischbach T, Kostenzer J, Schultz C, Tischer C, Trück J, Mader S. kinderkrankenschwester.eu
  • New World Health Organization recommendations for care of preterm or low birth weight infants: health policy. eClinicalMedicine 2023:102155. Care of Preterm or Low Birthweight Infants Group. doi:10.1016/j.eclinm.2023.102155
  • Research priorities for care of preterm or low birth weight infants: health policy. eClinicalMedicine 2023:102126. Care of Preterm or Low Birthweight Infants Group. doi:10.1016/j.eclinm.2023.102126
  • Stillen: Für den besten Start ins Leben – besonders für Frühgeborene. BabyCare 2023. European Foundation for the Care of Newborn Infants (EFCNI), Adamek I. https://www.babycare.de/stillen-fuer-den-besten-start-ins-leben-besonders-fuer-fruehgeborene/
  • ResQ Family: Respiratory Syncytial Virus (RSV) Infection in Infants and Quality of Life of Families—Study Protocol of a Multi-Country Family Cohort Study. Int. J. Environ. Res. Public Health 2023; 20: 5917. Trautmannsberger I, Bösl S, Tischer C, Kostenzer J,  Mader S, Zimmermann L, the ResQ Family Study Group. https://doi.org/10.3390/ijerph20115917
  • Development and validation of a screening questionnaire for early identification of pregnant women at risk for excessive gestational weight gain. BMC Pregnancy Childbirth 2023; 23: 249. Geyer K, Raab R, Hoffmann J, Hauner H.  https://doi.org/10.1186/s12884-023-05569-7
  • A pressing need for research to reduce nutritional uncertainties in preterm infant care: Findings from a European roundtable discussion with parent representatives. Early Human Development 2023; 179: 105729. Moss B, Lammons W, Geiger I, Kostenzer J, Mader S, Coutinho E, Kamphuis J, Soiron S, Bergmüller E, Modi E. https://doi.org/10.1016/j.earlhumdev.2023.105729

2022

  • Welt-Frühgeborenen-Tag 2022 – Mit Baby- und familienzentrierter, entwicklungsfördernder Betreuung die besten Startbedingungen ins Leben schaffen. Kinderkrankenschwester 2022; 11. Fügenschuh S, Mader S. www.kinderkrankenschwester.eu
  • Early-life residential exposure to moisture damage is associated with persistent wheezing in a Finnish birth cohort. Wiley Online Library 2022; 33. Tischer C, Täubel M, Kirjavainen P, Depner M, HyvärinenA, Piippo-Savolainen E, Pekkanen J, Karvonen A. https://doi.org/10.1111/pai.13864
  • Respiratory Syncytial Virus (RSV): burden, risks, and the way forward – calling for a collaborative approach at World Prematurity Day 2022. American Journal of Physiology-Lung Cellular and Molecular Physiology 2022; 323: L619-L622. Tischer C, Kostenzer J, Mader S, Zimmermann L. https://doi.org/10.1152/ajplung.00302.2022
  • Health-related quality of life of children born very preterm: a multinational European cohort study.  Qual Life Res 2022. Sung Wook Kim, Andronis L, Seppänen A, Aubert A, Barros H, Draper E, Sentenac M, Zeitlin J & Petrou S On Behalf of the SHIPS Research Group, including Mader S, Thiele N, Pfeil J. https://doi.org/10.1007/s11136-022-03217-9
  • An international study on implementation and facilitators and barriers for parent-infant closeness in neonatal units. Pediatric Investigation 2022; 6: 179-188.  van Veenendaal N, Labrie N, Mader S, van Kempen A, van der Schoor S, van Goudoever J, CROWN Study Group. https://onlinelibrary.wiley.com/doi/10.1002/ped4.12339 
  • The assessment of future RSV immunizations: How to protect all infants? Frontiers in Pediatrics 2022; 10; 981741. Bont L, Weil Olivier C, Herting E, Esposito S, Navarro Alonso JA, Lega F, Mader S, Morioka I, Shen K, Syrogiannopoulos GA, Faust SN, Bozzola E. https://www.frontiersin.org/articles/10.3389/fped.2022.981741/full 
  • Nährstoffsupplementierung vor, während und nach der Schwangerschaft: Ergebnisse der cluster-randomisierten „Gesund leben in der Schwangerschaft“-Studie. Geburtshilfe und Frauenheilkunde 2022; 82: 736-746. Geyer K, Günther J, Hoffmann J, Spies M, Raab R, Zhelyazkova A, Rose I, Hauner H. https://www.thieme-connect.de/products/ejournals/html/10.1055/a-1771-6368?articleLanguage=de#info
  • Parents’ experiences regarding neonatal care during the COVID- 19 pandemic: country-­specific ­findings ­of ­a multinational survey. BMJ Open 2022; 12: e056856. Kostenzer J, von Rosenstiel- Pulver C, Hoffmann J, Walsh A, Mader S, Zimmermann L. J I, on behalf of the COVID- 19 Zero Separation Collaborative Group. doi:10.1136/bmjopen-2021-056856
  • Child Anthropometrics and Neurodevelopment at 2 and 3 Years of Age Following an Antenatal Lifestyle Intervention in Routine Care—A Secondary Analysis from the Cluster-Randomised GeliS Trial. Journal of Clinical Medicine 2022; 11: 1688. Spies M, Geyer K, Raab R, Brandt S, Meyer D, Günther J, Hoffmann J, and Hauner H.  https://doi.org/10.3390/jcm11061688 
  • Are pre- and early pregnancy lifestyle factors associated with the risk of preterm birth? A secondary cohort analysis of the cluster-randomised GeliS trial. BMC Pregnancy and Childbirth 2022; 22: 230. Raab R, Hoffmann J, Spies M, Geyer K, Meyer D, Günther J, Hauner H. https://doi.org/10.1186/s12884-022-04513-5
  • Prozess zur Implementierung Evidenzbasierter Parenteraler Ernährung in Deutschen Perinatalzentren – Ergebnisse eines Multidisziplinären Netzwerks. Zeitschrift für Geburtshilfe & Neonatologie 2022.  Hoffmann J, Haiden N, Babl J, Fusch C, Kostenzer J, Piening B, Schubert S, Mader S, Arbeitsgruppe parenterale Ernährung von EFCNI, GNPI, ADKA.  https://www.thieme-connect.de/products/ejournals/abstract/10.1055/a-1711-3281
  • Management and outcomes of extreme preterm birth. BMJ 2022; 376:e055924. Morgan AS, Mendonça M, Thiele N, David AL. https://doi.org/10.1136/bmj-2021-055924 

2021

  • Ein Handlungsaufruf am Welt-Frühgeborenen-Tag: „Zero separation. Together for better care!“ Baby- und familienzentrierte entwicklungsfördernde Betreuung in Zeiten der COVID-19-Pandemie. Kinderkrankenschwester 2021; 10. Kostenzer J, Brunck A, Abenstein A, Zimmermann LJI, Mader S. www.kinderkrankenschwester.eu
  • Zero separation: infant and family-centred developmental care in times of COVID-19. The Lancet Child and Adolescent Health. 2021. Kostenzer J, Zimmermann LJI, Mader S, on behalf of the EFCNI COVID-19 Zero Separation Collaborative Group. https://doi.org/10.1016/S2352-4642(21)00340-0 
  • RSV: perspectives to strengthen the need for protection in all infants. Emerg Themes Epidemiol. 2021;18(1):15. Navarro Alonso JA, Bont LJ, Bozzola E, Herting E, Lega F, Mader S, Nunes MC, Ramilo O, Valiotis G, Weil Oliver C, Yates A, Faust SN. https://doi:10.1186/s12982-021-00104-5
  • Neonatal care during the COVID-19 pandemic – a global survey of parents’ experiences regarding infant and family-centred developmental care. EClinicalMedicine. 2021; 39: 101056. Kostenzer J, Hoffmann J, von Rosenstiel-Pulver C, Walsh A, Zimmermann LJI, Mader S. https://doi.org/10.1016/j.eclinm.2021.101056 
  • A call for zero separation – restrictive policies and their impact on neonatal care in light of COVID-19. Infant 2021; 17(3). Fügenschuh S, Kostenzer J. www.infantjournal.co.uk/journal_article.html?id=7217
  • Maßnahmen und praktische Tipps zur Verbesserung der parenteralen Ernährung bei Früh- und kranken Neugeborenen. Kinderkrankenschwester 2021; 8. Fügenschuh S, Hoffmann J, Mader S.  www.kinderkrankenschwester.eu
  • Parenterale Ernährung bei Früh- und kranken Neugeborenen – Ergebnisse einer Umfrage zu Barrieren in der klinischen Anwendung. Kinderkrankenschwester 2021; 7:195-197. Hoffmann J, Fügenschuh S, Mader S. www.kinderkrankenschwester.eu
  • Parenterale Ernährung bei Frühgeborenen. Frühgeborene 2021; 2:41-44. Fügenschuh S, Hoffmann J, Mader S. www.fruehgeborene.de/der-verband/verbandsmagazin-fruehgeborene
  • Parenterale Ernährung in deutschen Perinatalzentren. Monatsschrift Kinderheilkunde 2021; 169(6). Hoffmann J, Haiden N, Babl J, Fusch C, Piening B, Schubert S, Mader S, Arbeitsgruppe parenterale Ernährung von EFCNI, GNPI und ADKA. https://doi.org/10.1007/s00112-021-01219-4
  • Making human milk matter: the need for EU regulation. The Lancet Child and Adolescent Health 2021; 5(3):161-163. Kostenzer J et al. https://doi.org/10.1016/S2352-4642(21)00021-3

2020

2019

  • Should formula for infants provide arachidonic acid along with DHA? A position paper of the European Academy of Paediatrics and the Child Health Foundation.The American Journal of Clinical Nutrition 2019; 111(1): 10-16. Koletzko B, Bergmann K,  Thomas Brenna J, Calder P, Campoy C,  Tom Clandinin M,  Colombo J, Daly M, Decsi T, Demmelmair H, Domellöf M, FidlerMis N, Gonzalez-Casanova I, van Goudoever JB, Hadjipanayis A, Hernell O, Lapillonne A, Mader S, Martin CR, Matthäus V et al. https://doi.org/10.1093/ajcn/nqz252
  • Ethical, Legal, and Religious Aspects at the Border of Viability. Frontiers in Pediatrics 2019; 7:175. Oehmke F, Lauer T, Baecker J, Mader S, Soydan N, Born T, Brumhard M, Dettmeyer R, Staszewski S, Heinemann T, Kilian U, Sarikaya Y, Kress H, Tinneberg H-R, Bilgin Y, Zimmer K-P, Ehrhardt H. https://doi.org/10.3389/fped.2019.00175
  • Föräldrarollen i neonatalvården behöver anpassas och utvecklas [The role of parents in neonatal care needs to be adapted and developed]. Läkartidningen. 2019;(116). Erikkson M, Rombo K, Mader S. https://lakartidningen.se/wp-content/uploads/EditorialFiles/R9/%5BFSR9%5D/FSR9.pdf

2018

  • Parental views on the principles for cluster randomised trials involvingneonates and infants. Acta Paediatrica 2019; 108(5): 789-791. Thiele N, Walz JM, Lindacher V, Mader S, Greisen G, on behalf of the EFCNI Parents Advisory Board. https://doi.org/10.1111/apa.14664
  • Clinical trials in neonates: How to optimize informed consent and decision making? A European Delphi survey of parent representatives and clinicians. PLoS ONE 2018; 13(6): e0198097. Neyro V, Elie V, Thiele N, Jacqz-Aigrain E.  https://doi.org/10.1371/journal.pone.0198097
  • Erwartungen von Eltern an die Versorgung von Frühgeborenen – Sicht einer Elternvertretung. Frauenheilkunde up2date 2018; 12(1): 75-86. Walz JM, Thiele N, Mader S. https://doi.org/10.1055/a-0580-5479
  • Erwartungen von Eltern an die Versorgung von Frühgeborenen – Sicht einer Elternvertretung. Neonatologie Scan 2018; 7(1): 61-72. Walz JM, Thiele N, Mader S. https://doi.org/10.1055/s-0044-100846
  • Empfehlungen zur Förderung von Frauenmilchbanken in Deutschland, Österreich und der Schweiz (D-A-CH-Raum). Monatsschrift Kinderheilkunde 2018; 166(8): 722-729. Matthäus V, Haiden N, Abou-Dakn M, Berns M, Eglin K, Flemmer A, et al. https://doi.org/10.1007/s00112-018-0447-9

2017

  • Neonatal Clinical Trials for Preterm Labor: Takeaways & Insights into Increasing Enrollment of Patient Families. Neonatal intensive care: the journal of perinatology-neonatology 2017; 30(4). Discenza D, Sorrells K, Thiele N.

2016

2014

  • Public–Private Collaboration in Clinical Research During Pregnancy, Lactation, and Childhood: Joint Position Statement of the Early Nutrition Academy and the European Society for Pediatric Gastroenterology, Hepatology, and Nutrition. Journal of Pediatric Gastroenterology and Nutrition 2014; 58(4): 525-530. Koletzko B, Benninga MA, Godfrey KM, Hornnes P J, Kolacek S, Koletzko S, Lentze MJ, Mader S, McAuliffe FM, et al. https://doi.org/10.1097/MPG.0000000000000284
  • Maternal and perinatal health research priorities beyond 2015: an international survey and prioritization exercise. Reproductive Health 2014; 11:61. Souza JP, Widmer M, Gülmezoglu AM, Lawrie TA, Adejuyigbe, EA, Carroli G, Crowther C, Currie SM, Dowswell T, Hofmeyr J, Lavender T, Lawn J, Mader S, et al. https://doi.org/10.1186/1742-4755-11-61
  • Nachsorge von Frühgeborenen oder kranken Neugeborenen. Kinder- und Jugendmedizin 2/2014. Mader S & Polus S.

2013

  • NIDCAP Federation International Response. Pediatrics 2013; 132(2): e550-e551. Lawhon G, Helm JM, Buehler D, McAnulty G, Kosta S, Alberts JR., Als H, Mader S, et al. https://doi.org/10.1542/peds.2013-1447B

2010

  • Policy benchmarking report on neonatal health and social policies in 13 European countries. Acta Paediatrica 2010; 99(11): 1624-1629. Keller M, Felderhoff-Mueser U, Lagercrantz H, Dammann O, Marlow N, Hüppi P, Buonocore G, Poets C, Simbruner G, Guimaraes H, Mader S, et al. https://doi.org/10.1111/j.1651-2227.2010.01894.x
  • 1209 Socioeconomic Impact of Preterm Birth in Germany and Austria: A Parental Perspective. Pediatric Research. 2010;68(S1):599. Karen T, Außerer A, Krimbacher M, Mader S, Keller M. doi:1203/00006450-201011001-01209 

Advisory Group Member

2020

2019

2014

 

EFCNI publications

2021

2012

2011

2010

 

Book chapters

2022

2021

  • Involving Parents in Feeding Their Preterm Infants.  Kolossa S, Mader S, Pfeil J, Zimmermann LJI.  In Nutritional Care of Preterm Infants. Scientific Basis and Practical Guidelines. World Review of Nutrition and Dietetics. 2021, Volume 2. Koletzko B et al. (Eds.)(2021)

2014

2013

 

EFCNI editor

2022

  • Special Issue “Decision Making at the Border of Viability and in Critically Ill Newborn Infants”. Ehrhardt H, Mader S (eds). Children. 2022. https://doi:10.3390/children9020207